Mito-Kids

Living with the "Disease behind the Disease"

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Now on iTunes

Posted by mitokids on 13th March 2009

mitokidspodcast
You can now subscribe to our videos on iTunes, so you can get our videos straight to your computer, iPod, iPhone, iAppleTV, or however your eye watches video.

Mito-Kids iTunes

RSSIf you dont use iTunes you can use this feed

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Posted in Medical, Video, family | 1 Comment »

WMUR – NH Chronicle

Posted by mitokids on 9th March 2009

The first special behind the scenes look at the production of Mito-Kids aired on February 26th and is finally posted on their website in 3 parts

Enjoy!
http://www.wmur.com/chroniclevideo/18851138/index.html

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Posted in Medical, family | 1 Comment »

Mito – Griswalds

Posted by mitokids on 26th February 2009

Aly feeds Wifi to the rest of the car

Like our fore fathers before us we head west on a quest for answers about Mitochondrial Disease. Unlike our forefathers we are traveling the interstate and visiting relatives, and we have been dubbed “The Mito-Griswalds”. National Lampoon is not underwriting this Vacation, but we are having fun, bumping into odd people, and visiting relatives.

While we are on our tour NH Chronicle will be airing a half hour special on “Mito-Kids” Thursday Feb 26th at 7:30pm please tune in if you can. I hope they will also place it onliine and if they do I will be sure to send a link

There is a teaser here
http://www.wmur.com/chronicle/index.html

And more of the story here
http://www.wmur.com/chronicle/18739955/detail.html

I will be adding more video to www.mito-kids.com over the week as we do more interviews and take some vacation time

Thanks
Marc

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Posted in Medical, family, vacation | 1 Comment »

Mito-Kids Documentary teaser

Posted by mitokids on 30th January 2009

Initial teaser for a documentary video about my 4 daughters with mitochondrial disease. The footage covers 20 years of hospital stays, doctor visits, seizures, EEG Tests, Ketogenic Diet trials, VNS surgery, and on and on.

I am working on a few more short videos explaining how each of the kids live with their disabilities then raising funds to produce a feature length version with close to 100 hours of home video I have, and need to interview many doctors and specialists to discover just how far this disorder reaches. It affects my 4 kids, my sister, my dad and myself, all in different ways.

Donations made to www.AnniesAngels.net c/o Britney Dole and Mito-Kids will help further the production of the documentary.

To learn more about Mitochondrial disorders visit www.umdf.org

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Posted in Medical | 1 Comment »