Mito-Kids

Living with the "Disease behind the Disease"

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“Deaf Perception” a Mitokids Short film

Posted by admin on 7th March 2010

An article from Portsmouth’s “The Gossip Lady” hears the rumblings of a local short film to be made by deaf twin sisters.

By Jeanné McCartin
–Excerpt from

watch for ‘deaf Perception’

A simple Dole family project has gone haywire — and ballooned into a film project with 52 people.

“It came out of an idea Alyssa had for a movie last year — my 15-year-old daughter,” says Marc Dole, Hatchling Studio, and producer/director etc., for the film “Mito Kids.” “I told her to just write it.”

And so the kid who’s helped edit Dad’s work “(and watched for continuity),” since age 9 did just that; producing a five-page script in just a few hours titled “Deaf Perception,” “(DP),”

So Dad and mom Wanda say let’s get a camcorder and do it. Dole also shows it to his friend, filmmaker Chase Bailey, who loves it and immediately asks to direct the short. “DP” starts making the rounds and before Dole can say wooo-kid, it’s surrounded by professionals donating time and energy. (Cash is still needed for equipment and other costs. To help go to www.bit.ly/deafperception).

Alyssa, who is hearing impaired, her twin Ashley, who is deaf (and adapted sections of the film) and their siblings have Mitochondria and are the subjects of “Mito Kids.” “DP” is about people’s reaction to the twin’s signing one another in public. Alyssa will direct the film; Chase acting as mentor. Alyssa and Ashley also perform the leads.

And it continues. When word of the project reaches filmmaker William (Bill) Rogers, Coruway Films, he offers to film the behind-the-scene action for eventual use in the full-length “Mito Kids.”

The plan is to submit to festivals, but Dole will post it on YouTube as soon as possible to share its insights.

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Posted in Uncategorized, family | 3 Comments »

Meeting of Mito-Moms, & Dads & Cousins etc

Posted by mitokids on 1st February 2010

Mito-Kids is looking for people to get involved! We invite you to join us in our effort to bring attention to the subject of Mitochondrial disease through the production of the feature film “Mito-Kids.” www.Mito-Kids.com

This week is the first official week that Connie Bottinelli as Executive Producer, and Darren Dodge as Associate Producer. They will be joining the award winning team of Karlina Lyons, and Wanda & Marc Dole and all the great people that have helped get us this far.

We are looking for people with marketing experience and for people to research into everything from potential corporate sponsors to current medical information on Mitochondrial disease.

We are also looking for people without marketing experience but have the drive to help us get this project in the public eye.

Mito-Kids works with the local non-profit Annie’s Angels to raise funds that will help alleviate the costs of production. We are in the process of setting up an LLC for potential investors as we develop this groundbreaking film.

We would like to have a kick off meeting this weekend on either Saturday afternoon at the Hatchling Ballroom at 3 Congress St in Portsmouth, NH. Please let us know if you are interested and if you are available to attend. if you are interested but cannot attend please email us your skype or other IM name and we will try and do a live stream of the meeting.

please email us mitokids@gmail.com to RSVP and you can also RSVP on our facebook fan page.

http://www.facebook.com/home.php#/mitokids?ref=ts

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Posted in Uncategorized | 2 Comments »

The Gossip Lady visits Hatchling and discusses Mito-Kids

Posted by mitokids on 20th October 2009

The Gossip Lady visits Hatchling and discusses Mito-Kids

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Posted in Video | 1 Comment »

Mito-Kids wins Best Documentary NHFF 2009

Posted by mitokids on 20th October 2009

2009 NH DAY & NIGHT WINNERS ANNOUNCED!
“Crooked Lane” & “Mito-Kids” Honored.

NH Film Festival kicked off Thursday with a packed house at The Music Hall to see Marc Dole’s “Mito-Kids: Documenting Life” win NH Documentary Film of the Year and Chase Bailey’s “Crooked Lane” win NH Film of the Year. Both awards were determined by the NH Jury.

Mito-Kids 2009 Best NH Documentary

In “Mito-Kids,” Dole, the owner and founder of Hatchling Studios, told the story of his four teenage daughters who have grown up with disabilities that stem from mitochondrial disease, a chronic, genetic disorder that occurs when the mitochondria of the cell fail to function properly.

Mito-Kids PRESS COVERAGE
Foster’s Daily Democrat
Seacoast Online

When Bailey’s name was called for “Crooked Lane,” the entire cast and crew joined him on stage, including stars Ann Cusack (“The Informant!”), Brett Cullen (“Lost”), Eliya-Quaye Constance, 9, of Brentwood; Noa Siegel, 11, of Exeter; executive producer Mark Constance and co-producer Bethany Constance (parents to Eliya-Quaye).

Crooked Lane

Crooked Lane

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Posted in Uncategorized | 1 Comment »

Portsmouth Herald Article #2 Film documents local family's struggle with genetic disorder

Posted by mitokids on 22nd April 2009

from The Portsmouth Herald

http://www.seacoastonline.com/articles/20090421-LIFE-904210301

Film documents local family’s struggle with genetic disorder

MORE INFO
For information about the film and upcoming fund-raisers, visit www.Mito-Kids.com or write to mitokids@gmail.com.

By Jeanné McCartin
features@seacoastonline.com
April 21, 2009 6:00 AM

Triage is not a word commonly used in most households. But it is at the Dole home.

“It’s medical and education triage, for whoever needs it the most that day,” says filmmaker Marc Dole, owner and founder of Hatchling Studios, a Portsmouth-based animation company.

Marc and Wanda Dole, who live in Nottingham, met in high school and had their first child while both were 19. Today they have four daughters, all with mitochondrial disease — a chronic, genetic disorder that occurs when cell mitochondria fail to function properly.

Marc Dole is completing “Mito-Kids: Introduction,” a short documentary on his family’s life and daily challenges. “Mito-Kids” is no ordinary film for a number of reasons. For starters Dole hopes it will help “brand” the disease, like so many diseases that have “star power” behind them to get the message out.

It’s also a fund-raising tool for a full-length version, with the intent that both it and the short film will help educate the public and attract research funds.

But “Mito-Kids” is most unique for the clips taken from more than 100 hours of the Dole family’s home videos, shot over the past two decades. They start, like so many, capturing the joy of a first child’s birth, and later the three younger siblings. But it also chronicles the developing health issues caused by an illness, undiagnosed or misdiagnosed for years.

The footage includes holidays and family vacations and seizures and hospital stays and will include interviews with medical experts and original animation.

The list of individual challenges differs with each Dole child. As a family they deal with seizures, deafness, diabetes, immune disorders and severe learning and developmental disabilities.

The two oldest Doles are “medically sensitive.” “It’s a word my wife uses,” he explains. “It just means at any given time, my older two girls Britney (19) and Nikiya (17) could have a seizure and their heart could stop. AND the heart could stop because of the medication we give for the seizure. It’s a crazy thing.”

Crazier was not knowing what afflicted their girls. They were still unaware at the time the twins were born, Ashley and Alyssa, now 15.

When the children were diagnosed in 1994, they were told there were only 290 families dealing with it in the United States. As for families with multiple mito-kids, with widely varying effects, “You couldn’t Google it in 1994,” says Dole. “So we didn’t know there were others out there until about a year ago when I started researching again.”

Still little is known of the disease, or why individuals are affected so differently. Dole said he looks at the differences in his daughters’ lives and wonders what tipped which scale. The two oldest lived their earlier years in a house with radon, discovered only they moved, and have different vaccination histories than the two youngest.

One twin is deaf, the other hard of hearing, both are diabetic and have other health issues. But neither have seizures and both are developmentally normal. Did the radon and vaccination differences alter the disease’s effect?

“This is what I’m trying to find out in the documentary. Does it matter? Was it chance?” he says. “I don’t want to be known as the leader of the disease but I want to get the story out there. …; And it can help (others affected) by letting them know they’re not the only ones dealing. For 10 years, we thought we were.”

These days the Dole family home videos are being edited and logged, while additional filming of experts is being done. The short will be finished in time for submission to the Cannes Film Festival’s Short Film Corner.

Dole has received an intent-to-broadcast letter from New Hampshire Public Television. The New Hampshire ABC affiliate, WMUR-TV 9 has aired the first of four planned behind-the-scenes news pieces about the project.

Last Sunday, Dole started to work the short film’s voiceovers. Shortly into it he choked up, he said. “I thought, ‘That’s right. This is me. …; I just talked about my daughters,” he says. “For us, a lot of this is just getting to the next point and getting through what you’re doing.”

Right now he’s ready to get this out there; he’s ready for some answers.

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Posted in Uncategorized | 1 Comment »

Mito-Kids Fundraiser Article in Herald

Posted by mitokids on 17th April 2009

from The Portsmouth Herald

http://www.seacoastonline.com/articles/20090417-NEWS-90417022

WHAT: Mito Kids Zumba with Angela Fund-raiser

WHERE: The Rockingham Ballroom, 22 Ash Swamp Road, Newmarket

WHEN: Friday, April 17; 6 to 7 p.m.

COST: $6

WEAR: Loose, comfortable clothes

INFO: About the film and upcoming fund-raisers, www.mito-kids.com or write to mitokids@gmail.com

By Jeanné McCartin
features@seacoastonline.com
April 17, 2009 11:33 AM

Triage is not a word commonly used in most households. But it is at the Dole home.

“It’s medical and education triage, for whoever needs it the most that day,” says filmmaker Marc Dole, owner and founder of Hatchling Studios, a Portsmouth-based animation company.

Marc and Wanda Dole, who live in Nottingham, met in high school and had their first child while both were 19. Today they have four daughters, all with mitochondrial disease — a chronic genetic disorder that occurs when cell mitochondria fail to function properly.

Marc Dole is completing “Mito-Kids: Introduction,” a short documentary on his family’s life and daily challenges. The Mito-Kids Zumba with Angela Fund-raiser, in support of the film’s production, is scheduled for Friday, April 17 at the Rockingham Ballroom in Newmarket.

“Mito-Kids” is no ordinary film for a number of reasons. For starters Dole hopes it will help “brand” the disease, like so many diseases that have “star power” behind them to get the message out.

It’s also a fund-raising tool for a full-length version, with the intent that both it and the short film will help educate the public and attract research funds.

But “Mito-Kids” is most unique for the clips taken from more than 100 hours of the Dole family’s home videos, shot over the past two decades. They start, like so many, capturing the joy of a first child’s birth, and later the three younger siblings. But it also chronicles the developing health issues caused by an illness, undiagnosed or misdiagnosed for years.

The footage includes holidays and family vacations and seizures and hospital stays and will include interviews with medical experts and original animation.

The list of individual challenges differs with each Dole child. As a family they deal with seizures, deafness, diabetes, immune disorders and severe learning and developmental disabilities.

The two oldest Doles are “medically sensitive.” “It’s a word my wife uses,” he explains. “It just means at any given time, my older two girls Britney (19) and Nikiya (17) could have a seizure and their heart could stop. AND the heart could stop because of the medication we give for the heart. It’s a crazy thing.”

Crazier was not knowing what afflicted their girls. They were still unaware at the time the twins were born, Ashley and Alyssa, now 15.

When the children were diagnosed in 1994, they were told there were only 290 families dealing with it in the United States.

As for families with multiple mito-kids, with widely varying effects, “You couldn’t Google it in 1994,” says Dole. “So we didn’t know there were others out there until about a year ago when I started researching again.”

Still little is known of the disease, or why individuals are affected so differently. Dole said he looks at the differences in his daughters’ lives and wonders what tipped which scale. The two oldest lived their earlier years in a house with radon, discovered only they moved, and have different vaccination histories than the two youngest.

One twin is deaf, the other hard of hearing, both are diabetic and have other health issues. But neither have seizures and both are developmentally normal. Did the radon and vaccination differences alter the disease’s effect?

“This is what I’m trying to find out in the documentary. Does it matter? Was it chance?” he says. “I don’t want to be known as the leader of the disease but I want to get the story out there. … And it can help (others affected) by letting them know they’re not the only ones dealing. For 10 years, we thought we were.”

These days the Dole family home videos are being edited and logged, while additional filming of experts is being done. The short will be finished in time for submission to the Cannes Film Festival’s Short Film Corner.

Dole has received an intent-to-broadcast letter from New Hampshire Public Television. The New Hampshire ABC affiliate, WMUR-TV 9 has aired the first of four planned behind-the-scenes news pieces about the project.

Last Sunday, Dole started to work the short film’s voiceovers. Shortly into it he choked up, he said. “I thought, ‘That’s right. This is me. … I just talked about my daughters,” he says. “For us, a lot of this is just getting to the next point and getting through what you’re doing.”

Right now he’s ready to get this out there; he’s ready for some answers.

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Posted in Medical, Uncategorized, family | 1 Comment »

Zumba Fundraiser Announced

Posted by mitokids on 22nd March 2009

Thanks to many volunteers who want to see this film made we have 3 fundraisers in the works.

Mark your calendars for April 17th

The first fundraiser will be a Zumba class in Newmarket with Angela Garcia check out her website at http://zumbawithangela.com/ it will be at the Rockingham Ballroom in Newmarket, almost 20 years after Wanda and I had our wedding reception there.

Signup details will be online soon. if you would like to be notified of the event or help volunteer send us an email mitokids@gmail.com

Zumba® Fitness is a cardio dance fitness program created by Columbian star choreographer Beto Perez. It incoroporates international rhythms such as merengue, salsa, cumbia, cha-cha, reggeaton, bellydancing and more in an interval aerobic workout. Participants generally burn between 400-800 calories an hour. More astoundingly, though, is the amount of people that report that for the first time in their life they actually enjoy and look forward to working out!

The Event will be a fundraiser to raise money for the production of the documentary film “Mito-Kids” working in conjunction of Annie’s Angels, a Stratham, NH

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Posted in Uncategorized | 1 Comment »

Now on iTunes

Posted by mitokids on 13th March 2009

mitokidspodcast
You can now subscribe to our videos on iTunes, so you can get our videos straight to your computer, iPod, iPhone, iAppleTV, or however your eye watches video.

Mito-Kids iTunes

RSSIf you dont use iTunes you can use this feed

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Posted in Medical, Video, family | 1 Comment »

WMUR – NH Chronicle

Posted by mitokids on 9th March 2009

The first special behind the scenes look at the production of Mito-Kids aired on February 26th and is finally posted on their website in 3 parts

Enjoy!
http://www.wmur.com/chroniclevideo/18851138/index.html

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Posted in Medical, family | 1 Comment »

Mito-Kids Documentary teaser

Posted by mitokids on 30th January 2009

Initial teaser for a documentary video about my 4 daughters with mitochondrial disease. The footage covers 20 years of hospital stays, doctor visits, seizures, EEG Tests, Ketogenic Diet trials, VNS surgery, and on and on.

I am working on a few more short videos explaining how each of the kids live with their disabilities then raising funds to produce a feature length version with close to 100 hours of home video I have, and need to interview many doctors and specialists to discover just how far this disorder reaches. It affects my 4 kids, my sister, my dad and myself, all in different ways.

Donations made to www.AnniesAngels.net c/o Britney Dole and Mito-Kids will help further the production of the documentary.

To learn more about Mitochondrial disorders visit www.umdf.org

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Posted in Medical | 1 Comment »