Living with the "Disease behind the Disease"

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Mito-Kids is a documentary based on the lives of my 4 daughters (15-19) and how they live with their individual disorders caused by Mitochondria Disease.

Mitochondria is the energy within almost every cell in our body providing 90% of the energy we use each day. This disorder is growing in awareness because it is being seen as the root disorder behind, in part or in full, epilepsy, ALS, Parkinson’s, Alzheimer’s, Heart Disease and many other neurological disorders. My children have disabilities that range from Seizures, a Stroke, Deafness, Diabetes, Immune disorders, to learning disabilities. For the last 19 years I have videotaped events and daily life that are normal to us but extraordinary to others.
I started this project in December of 2008 when I found out my oldest daughter’s disease had worsened and we were told to brace for the worst. We are in the Production phase of the project looking for monies to shoot interviews, and continue searching through the over 100 hours of home video (most of it shot on the professional cameras) for the extraordinary moments in our lives. While I am very fortunate to have many friends in the film and video industry in New England and all over the US, who will donate their time, there are still production costs for rentals, media, travel etc that will need to be paid for.
For the project I have teamed up with a 501c3 that I sit on the board of to help raise some initial funds and awareness for the project.

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